I've had a few inquiries as to how my son is doing. I haven't posted anything lately because I was hoping to be able to post good news. I don't have too much of that, with the exception that we don't have to go see Dr. Greenfield, the ped. urologist anymore. If you are in the area and need a pediatric urologist, find someone else if you can!
I have heard repeatedly that he is brilliant but his bedside manner sucks. Well, all I have to say is that his bedside manner is beyond sucky, and you would never know that he works exclusively with sick children by the way he treats them. I would say that you'd think he works with dogs and not kids, but every vet I've ever met has more compassion than this guy. And as far as being brilliant, he basically gave up when he couldn't figure out what was wrong with my son, so I have my doubts there, too. This is only my opinion, based on only 2 visits with the man, but there you have it.
Anyway- in the past week I have taken Lucas for more blood work and x-rays, and we have appointments with a surgeon for the spot on his liver and a GI specialist for his on-going acute abdominal pain. He had some tests done to rule out celiac disease, but it was inconclusive (so far). His IgA antibodies are a little low, and so far that is all we know. I imagine the GI doc will order further blood work, even if it is at my insistence.
We are so thankful for all of your concern and prayers. Hopefully I will have better news soon!